Dying with Dignity

Life is a Terminal Illness

Preamble

For almost 40 years, it was my privilege to watch and medically assist mothers (and many fathers) to prepare for a new life. However, it is my belief that the medical profession is not doing enough to assist us at the other end of life. Sure, we have excellent palliative care services that are generally available but, even with the best of these, at least 5% of us are destined to experience a painful or undignified death that could be avoided if there was access to voluntary assisted dying (VAD), often called euthanasia.

Furthermore, good palliative care is only possible when some doctors are willing to stretch the rules a bit and help some of their charges with judicious access to a little extra medication. However, to do this, leaves them wide open to a charge of “murder” by vigilante associates.

This is a community issue that requires community action in parliamentary legislative reform.

There are parallels with abortion law reform and termination of pregnancy, an aspect of my former professional life that was never completely resolved during my period of practice in the discipline of obstetrics and gynaecology. However, many states of Australia, and countries throughout the world, satisfactorily enacted abortion law reform many years before the state of NSW.

What I am Doing

So, I am assisting in a campaign to get a bill through the NSW State Parliament in 2021 that would permit doctors to assist terminally ill patients to opt for voluntary assisted dying (VAD).

Of all the possible arguments against VAD, the most difficult to defend is its potential misuse and or the “the slippery slope” argument.  The only defense is good legislation. That is why I support the West Australian (WA) model.

See https://ww2.health.wa.gov.au/voluntaryassisteddying and click on “Voluntary Assisted Dying in Western Australia” for a précis.

A good summary is:

“To be eligible for voluntary assisted dying, the person must meet all of the eligibility criteria. This includes that they:

  • are aged 18 years or over
  • are an Australian citizen or permanent resident who has been ordinarily resident in Western Australia for at least 12 months
  • have been diagnosed with at least 1 disease, illness or medical condition that is advanced, progressive and will cause death; and, will, on the balance of probabilities cause death within a period of 6 months (or 12 months for neurodegenerative); and, is causing suffering that cannot be relieved in a manner that the person considers tolerable
  • must have decision-making capacity in relation to voluntary assisted dying
  • must be acting voluntarily and without coercion
  • must have an enduring request for access to voluntary assisted dying.


To access voluntary assisted dying a person must be independently assessed as eligible by two medical practitioners. These medical practitioners must meet certain requirements and have undergone mandatory training. They may also refer the person for additional assessments if required.

During the process the person must make three separate requests for voluntary assisted dying: a first request, a written declaration and a final request. The written declaration must be witnessed by two people (who meet specific requirements).

Voluntary assisted dying may be through self-administration or practitioner administration of the voluntary assisted dying substance this is a decision made in consultation with the co-ordinating medical practitioner. If self-administration, the person must appoint a Contact Person who has specific responsibilities, including return of any unused substance. If practitioner administration this may be done by a medical practitioner or by a nurse practitioner (who meet specific requirements).

The death certificate must not include any reference to voluntary assisted dying.

Throughout the process the person must be informed of many different aspects relating to voluntary assisted dying, as well as their treatment and palliative care options.

Fundamental to the process is that it remains voluntary and free from coercion. The person can withdraw or revoke their involvement at any stage.

Health practitioners are also able to refuse to participate in voluntary assisted dying for any reason (including conscientious objection).

Health care workers must not initiate discussion about, or suggest, voluntary assisted dying to a person to whom they are providing health or professional care services. The exception to this is for medical practitioners or nurse practitioners if, at the same time, they also inform the person about treatment and palliative care options available to them and the likely outcomes of that care and treatment.”

Living as I do in NSW, I would not have access to the end that I may need in my own Advanced Care Directive if the WA model were to be enacted here. However, this legislation would provide NSW residents with the secure knowledge that, in the event of a terminal illness, they would have the option of a legal and dignified exit. And it would legally protect my medical colleagues who choose to assist them. For both, just as it is in the abortion debate, it is all about personal CHOICE, which I hold to be a universal human right.

What You Can Do

If you, like I, believe that we all have the right to die with dignity and without interference from the moral views of others, then you may support this very conservative legislation.

At this point in time, it is mostly about numbers. It’s as easy as 1, 2, 3:

  1. Please join DWD NSW in a petition in support of the legislation. Go to https://dwdnsw.nationbuilder.com/petition_2020
  • You can help more if you “Sign Up” with DWD (Dying with Dignity) NSW, see https://dwdnsw.nationbuilder.com/membership. To do more you may wish to Join or Donate to DWD.
  • If you feel very strongly about this you could recruit 3 friends, neighbours or others using this page or material that you can find on the DWD webpages.

A Message to Doctors

Somewhat surprisingly, whilst upwards of 85% of the general community supports VAD, this falls to as few as 40% when doctors are surveyed. The reasons are complex. However, ours is a carefully orchestrated campaign that aims to have the numbers “on the floor” when the MPs come to vote.

We anticipate a vociferous push back from a minority who wield considerable political power. Some of that minority are doctors, and therein is our special dilemma. Our MPs are told to “listen to the experts” so they often turn to medical professionals in their community for advice. We need a committed core of health professionals who are willing to provide a viewpoint that is not biased by a political agenda or personal religious beliefs.

You can help by joining Health Professionals for Assisted Dying (HPAD) Choice, see https://www.hpadchoice.org.au/join_hpad

Max Brinsmead

3rd January 2021